We started day out early for lab @7:00am and then PT at 8:00 then Cardiologist appt. at 9:15 then we
will go to ATC and do his fluids which yesterday lasted 5 hours.
Dan is still having a great deal of trouble keeping his balance and his blood pressure continues to go real low and that is why they have scheduled us with Cardiology -doc in the ATC yesterday said that
Cardiology will probably give him a Holter Monitor to wear so they can track exactly what he going on with his heart rate. He is so very weak and unfortunately still very stubborn and seating down when I ask him to so he won't fall down. I may be a good caregiver but unfortunately I am not strong enough to hold him up for very long. I can at least keep him from hitting the floor hopefully.
Dr. Jones (his stem cell doc) saw us yesterday and said it is very normal for his blood pressure to go this after stem cell transplant... could be delayed reaction to all the chemo or just his body adjusting to his new stem cells.
It really is so scary to see him get this weak. He wants to get stronger so bad and I told him last night one day or one hour at a time. He continually tells me how much he appreciates me being there for him and he doesn't know what he would do if I hadn't been here with him. Of course as I tell him I
wouldn't be any other place. I told him last night the only bad part of any of this is having to see him
be in pain and go through all of this... the good part is I have been able to be with him everyday and I cherish all those moments we get together.
Everyone always cherish the moments with the ones you love even the bad moments as something good can come from those too!
I know that you wouldn't be anywhere else and he is lucky to have you there with him. Keep hanging on and keep the faith. The journey has been a long one, but you're about to get through it. Love and miss you.
ReplyDeleteVery well put Rhonda. We often take for granted the dull, boring, everyday life...till that routine gets shaken to it's core. To paraphrase a song from the late 60's/early 70's "you don't know what you have got till it's gone, paved paradise and put up a parking lot..."
ReplyDeleteMay your love for each other carry you both through these bad days.
ReplyDelete