Not going home--

Well doc came in and Dan's heart rate was 148 so they have addressed that and it is now back to normal thank goodness. They will try and get a x-ray of the abdomen today.  If all stays stable we
will we probably get to go home tomorrow.

Back in the hospital....

Well it is Christmas Eve and we had to go in hospital on Monday, Dec 22nd. I have been posting when I can to Facebook but have neglected getting on the blog. We have been going 2 steps up and 3 or 4 back it seems. Dealing with the passing out with the blood pressure dropping and the stomach infection which has really got him down. We were on 14 days of meds for that (the infection he acquired while in the ATC(Ambulatory Treatment Unit) isn't that great! But he was tested again on Monday for that and it is still there so new medicine starting today which we hope will attack the infection and get rid of it.

This morning his blood count is way down so he is getting a blood transfusion. Potassium was high yesterday so they would not do the EGD (scope of his stomach). Poor guy went 16 hours without eating 14 of which he couldn't even have water to drink basically for nothing because they didn't do the scope.

We are so hoping they will get a grip on this so he can start to get better. He is so very weak.
I haven't left since we came in Monday so I am sure my clothes are getting a little familiar to everyone but you know I just don't care. I was going to leave yesterday to take shower and get fresh clothes for both of us. But we kept waiting and waiting for them to do the procedure and then once we found out last night Dan had started getting real sick to his stomach so I didn't want to leave him.

Once the doc comes in and we see exactly what the next steps are I may run to the house and shower and get some things he needs for up here. Of course he is hoping we go home but I am afraid that will not happen.

We want to wish everyone a Very Merry Christmas and a Happy New Year for everyone including ourselves.. We Love and miss all of you and hope to see you soon.

Cherish all those precious moments you get with friends and your loved ones!

Dan and Rhonda

We get to stay home for now..... yeah!!!

They have decided to treat Dan with Mega doses of steroids for the next 3 days... at home... I will do the IV fluids and they have scheduled him for some scopes with biopsy next week. So unless things get worst than they are with his stomach we will get to be at home. I believe we will enjoy a little hibernation in the little house.

We have had appointments all day today and by the time we get home this evening we will just want to crash I am sure.

I did let them know at my job that I won't be coming back. It was such a difficult decision as I truly did love working with all my friends at Cook Children's. It is good though to get that decision behind me as it was causing me to stress not knowing what I was going to do.

For now Dan and I will just do the best we can financially without my added income and just take it a day at a time.

I know God always provides a way and I know that being there for Dan is where I need to be.

Please keep us in your thoughts and prayers as we continue this journey.
We love and miss each and everyone of you.

Thursday afternoon.... back in the hospital we go....well maybe

Dan has had a rough past 5 days or so with stomach issues and low grade fever. Dr. Jones will be
admitting back into the hospital so they can do a biopsy and possibly treat him with high dose steroids.

Actually Dr. Jones came in and since Dan has not had any diarrhea today--we are giving it one more day and see what happens.