Good morning everyone,
    We saw Dr. Jones yesterday and he feels Dan is doing quite well... his orthostatic blood pressure is common in Stem cell patients and it will just take time to level itself out. He said hopefully in another 30 days it will be resolved.

    We will have Thanksgiving Day off and looking forward to Roger and Mary coming for a short visit. We will have Thanksgiving dinner with the folks here at the RV resort.

    Saw the pictures of the early Christmas decorations and it made us a little homesick. They were very nice.

   We still are not sure when he will get to go home... and are concerned we may need to stay here longer due to the cold weather at home and possible snow and ice. So that is a decision we are thinking on.

    I will be so glad when Dan feels better and is able to take more walks... as it is right now with the blood pressure dropping we have to limit those so we don't run the risk of him falling.

    It is hard to believe it is Thanksgiving and Christmas soon.

  We hope everyone has a very Blessed Thanksgiving!  
  We love you all very much!!

Tuesday evening... nice and cozy in our living room...

We were very fortunate to get another 2 days off from the clinic... I am doing the IV fluids for Dan here at the house. It got down to freezing last night... yes even here in Houston. So Dan and I were very glad we didn't have to go out in the cold this morning.

He is still struggling with nausea, weakness and dizziness. He is getting very discouraged that he
isn't getting his strength back. I told him I really felt it was the medications he has to be on and for now we can't do anything about that.

It is nice though just getting to be in where it is nice and warm and cozy..

I am hoping tomorrow will bring a better day so he has the strength to go to the clubhouse and get a little exercise.

We sure miss being in our own home and friends and family.

We have had a few days off from the clinic....

Good morning to everyone..  Since our last report has been quite a ride. We had a brief hospital stay due to chest pains. They have ruled it to be acid reflux thank goodness.

We had the weekend off with IV fluids at home then back on last Monday and then Tuesday and Wednesday off again and IV fluids at home. It is nice to be able to stay at the "Temporary House" instead of having to go to clinic everyday.

Dan is still extremely weak hopefully just from them tapering his steroid dosage. We will see Dr. Jones (his stem cell doc) today and we will see what he has to say. It is very cold here today especially for Houston.

I started the truck got it nice and warm and bundled Dan up so he wouldn't get cold. He told me on the way to the clinic he loved me so much for doing such nice things for him.

I told him I took that after my wonderful mother... she is a very caring and loving women. I wouldn't know how to treat him any other way.

He is having a rough time with tremors right now due to couple of his medications. He can't write and sometimes can barely hold his eating utensils. We are going to talk to Dr. Jones about that today. Of course we know he can't go off the meds that is causing it but we will see what the doc says.

It is nice and peaceful here in his room at the ATC clinic. We have the light off and the relaxation music playing and he is snoozing. Some quiet time for me too.

Much love to all of you...

A week of ups and downs

Well Wednesday brought us a stay in the hospital. Dan had chest pains early morning and we ended up in the ER all day and then admitted to the stem cell unit in the afternoon. Finally got to a room on the unit at 10:15pm-- As it turned out they think it was just acid reflux.. although some of his cardiac enzymes were elevated. Dr. Jones his stem cell doc seems to think it is a side effect of some of his meds.

We were able to have 2 days off from the clinic again this weekend and I am giving him his IV fluids. One day at a time!

Weather here is cool... we are suppose to get possible freeze toward end of the week. Not the weather Dan and I like but it will probably pass quickly.

Saturday and Sunday off again....

Well we got a couple of days off from the clinic again. They do have Dan on extra fluids but I was able to give him his IV fluids at home which took about 6 hours. They also had him wear a Holter Monitor for his heart since he has been having his blood pressure bottom out quite often.

They think the reason his blood pressure is doing this is because of his electrolytes being low. But Dr. Jones wants to make sure something else isn't going on.

So I am posting some pics--Dan wanted me to take a pic with after I got him all hooked up on Saturday--this is an everyday event for us... the good thing is we are able to be together...