Friday, August 29, 2014

Home for a couple of days...

Well we had 4 appointments today and then came home for Saturday and Sunday then we will
go back to Houston on Monday. Have a little bump in the road with Dan's EKG-- so they are
having him to a nuclear stress test on Tuesday --but so far everything is still going according
to plans. Still expected to be admitted to the hospital of Sept. 8th and start the extreme chemo and then have the transplant on Sept. 15th.

Everyone have a nice Labor Day weekend!

We will talk next week...

Rhonda and Dan

Thursday, August 28, 2014

Dan is off to an appointment with Neurologist

Dan is at his appt. by himself... we had scheduled Dish to come out today and do an install so
we can record our favorite shows. After we did that they added an appointment today for the
Neurologist due to Dan having trembling in his hands. So unfortunately he had to do this appointment on his own. The trembling has gotten a little better since starting the blood pressure medicine.

We have a full day of appointments Friday morning, then if all goes well we will head home for a couple of days for the Labor Day weekend.

Yesterday was a busy day with a 1-1/2 hour class on care during hospital stay. We received lots of good information and some not so good news-- Dan won't be able to even blow his nose in the beginning after the transplant while in the hospital... no flossing, etc.  This of course is all due to his
immune system being at 0.  To say the least he is getting a little anxious. But we are going to get
through this and loo forward to him getting to come home.

We will talk soon,
Rhonda

Wednesday, August 27, 2014

7 more appointments today...

Here we are for another 7 appointments. Dan didn't rest well last night... they have taken him off several of his medicines and supplements in preparation for the extreme chemo before the transplant.
But we are ahead of the game again on our appointments so maybe we will get out early again.

Thanks to everyone in continuing to keep us in your thoughts and prayers.
We love all of you very much!
Talk a little later today.
Rhonda and Dan

Tuesday, August 26, 2014

A long day at MD Anderson

Well we had 7 appointments today. We weren't suppose to be through till 7:30 this evening
but we managed to move everything around and we were through by 2:30 as Dan says
due his good looks and charm. For those of you who will see us this weekend you may want to
widen the doorways in order for Dan to get his head through since several of the clinical coordinators and nurses think he is in his early 50's.

Tonight our entertainment will be watching a video on how to take care of his subclavian catheter.
They will put the catheter in next Wednesday, Sept. 3rd. It has been a very full day with promising
information but yet very scary to think about.

Our plan was to come home Thursday evening for the weekend but that has been changed to Friday
evening due to appointments till noon on Friday.

Until later,
Rhonda and Dan

Monday, August 25, 2014

Blood pressure up and down

Well the blood pressure just continues to go up and down. At least it is staying down most of the time. Starting tomorrow we have 14 appointments within 2 days.
We hope to come home Thursday evening  for a few days for Labor Day weekend. Then back to Houston for more pretest and then admission to hospital on Sept. 8th.
Our heat index right now is 109.... so we are staying in where it is cool.

Saturday, August 23, 2014

Blood pressure is down!!

Well after 2nd day of an additional blood pressure medicine things seem to be much
better-hopefully they will stay that way.  We had planned to drive to Galveston but
changed our mind due to the blood pressure. We had a nice dinner here at the Park Model and
Dan took a nice walk around the lake.

Oh and yes Dan's blood pressure is much better-- he is back to his mean self!! Ha! Ha! I am glad
he is better and feeling himself again.

We miss everyone very much.

Friday, August 22, 2014

Just still waiting to get the blood pressure down.....

Well the beta blocker is lowering the heart rate-- which is making Dan very fatigued but not lowering the blood pressure very much. We have put a message in for the PA and Doc so there know the blood
pressure is still up. We did go for our walk this morning just not as brisk as usual.
So we will just wait for word as how to precede.

Thursday, August 21, 2014

A day of relaxation and rest........

We have been taking it easy today--took a walk around the little lake here at the RV park and Dan is taking a a little nap- we are waiting for blood pressure medicine to kick in.

Wednesday, August 20, 2014

Additional update......

Tues, August 18th Dan had his 3rd Bone Marrow Biopsy-- and also lab work. We met with his PA and Dr. Kadia today and Dr. Kadia mentioned his blast are at 2% which has remained stable since
starting the chemo (the blast have to do with the bone marrow) the fact they have remained the same
is very good. When we see Dr. Jones in the stem cell department next week we will find out
results of the rest of the bone marrow biopsy.
 Dan has had a little problem with his blood pressure since Monday evening so Dr. Kadia and his PA are addressing that with some medication.
 
As always Dan and I appreciate all your thoughts and prayers!!

Arrived in Houston, August 17th and got settled in to our "New Home" at least for around 4 months.

Sunday, August 10, 2014

Saturday, August 2, 2014